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UID:20240512T191717EDT-2805kv0ihv@132.216.177.157
DTSTAMP:20240512T231717Z
DESCRIPTION:Osteogenesis Imperfecta (OI) is a genetic bone disorder causing
  connective tissue weakening\, bone fragility and/or deformities\, pain\, 
 and quality of life concerns. OI remains largely unknown to healthcare pro
 viders\, which can cause significant ethical concerns in children’s OI car
 e. Researchers have shown that using play can support children’s efforts t
 o process and discuss their experiences. Children from Shriners Hospitals 
 for Children-Canada collaboratively created a play called “The Hospital of
  Unhappy Surprises” detailing “bad” hospital environments and children’s v
 ision for an ideal practice. The aim of our study is to create a professio
 nally animated version of 'The Hospital of Unhappy Surprises' with the glo
 bal OI community. We used ethno-dramatic storytelling to elicit children’s
  voices and transform oppressive scenarios into liberating ones. Children 
 participated in semi-structured\, online interviews using print-out puppet
 s where they were shown a preliminary staging of the play\, invited to exp
 ress their experiences\, and act out scenes\, permitting the fictional por
 trayal of their lived experiences. Data from child interviews will be pres
 ented to key stakeholders (i.e.\, Advisory Council) comprised of the OI co
 mmunity (e.g.\, decision-makers\, clinicians\, advocates)\, parents of OI-
 affected children\, and former OI child patients to develop the final scri
 pt. The research team will then collaborate with professional artists to e
 ncase the findings in an evocative\, high-quality and impactful final prod
 uct.\n
DTSTART:20240410T160000Z
DTEND:20240410T170000Z
SUMMARY:Research Seminar with Argerie Tsimicalis & Jenny Wang\, Ingram Scho
 ol of Nursing: Envisioning child-friendly care using puppet theatre: Metho
 dological approach and preliminary findings
URL:https://www.mcgill.ca/crcf/channels/event/research-seminar-argerie-tsim
 icalis-jenny-wang-ingram-school-nursing-envisioning-child-friendly-care-35
 3408
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